The Process

The James Lind Alliance (JLA) process brings patient, carer, and clinician groups together on an equal footing in a Priority Setting Partnership (PSP) to:

  • identify unanswered questions about a health problem which is important to them;
  • work as partners to prioritise the questions;
  • produce a 'top ten' list of jointly agreed priorities as research questions to be presented to researchers and funders.

Our Project Protocol document outlines the process and sets out the aims, objectives and commitments of the PSP. It sets out how the project meets the principles established by the JLA. Tricia, our JLA Adviser has played a central role in helping the Steering Group establish this protocol and works to ensure that accountability and transparency are maintained throughout the project.

Stage 1 - Establishing the PSP  - DONE!

  • Steering Group established
  • Protocol agreed
  • Partners recruited
  • Project management and  administration arrangements confirmed
  • Initial Steering Group meeting

Stage 2 - Survey - DONE!

  • Initial survey open
  • Partner organisations disseminate survey to members
  • Survey advertised

Stage 3 - Data management - DONE!

  • Data management protocol agreed
  • Survey closes and all questions are captured
  • Out of scope questions removed and collated
  • Duplicates combined
  • Questions grouped by theme and arranged in a research question format
  • Existing research checked
  • Results and process reviewed  by Steering Group

Stage 4 - Interim prioritisation - NOW OPEN!

  • Interim prioritisation survey designed and open
  • Prioritisation analysis conducted
  • Shortlist of unanswered      questions produced for final prioritisation

Stage 5 - Final prioritisation - MAY 2019

  • Workshop attended by partners and partner organisations
  • Top ten unanswered research  questions agreed by consensus


Project documents

JLA- RKR -PSP-Protocol web (pdf)