What is the James Lind Alliance?
The National Institute for Health Research (NIHR) funds the infrastructure of the James Lind Alliance (JLA) to oversee the processes for Priority Setting Partnerships (PSPs). PSPs aim to help patients, carers and health care professionals work together to agree which are the most important treatment uncertainties affecting their particular interest, in order to influence the prioritisation of future research in that area – in this case problematic knee replacements.
When might patients with problematic knee replacements interact with clinicians?
When a patient experiences problems following knee replacement, they interact further with healthcare professionals at 3 different stages. Your questions may relate to any aspect of these:
1) Assessment – The patient may be referred to a specialist revision knee surgeon who performs clinical examination and guides further tests or investigations. The findings will help to guide potential further treatment.
2) Management – the patient may be offered further management which may involve further surgery (revision or redo surgery), or non-surgical treatment including physical or drug therapies.
3) Rehabilitation – if revision surgery is performed, there is a period of further rehabilitation.
How did the Partnership come about?
Professor Andrew Toms initially proposed the PSP after discussion with colleagues from Bristol (James Murray & Andrew Porteous) and Oxford (Andrew Price), who have combined to provide leadership for the project. The idea was supported by BASK and BOA.
Who is involved in the Partnership?
Organisations and individuals have been invited to join the PSP representing the following groups:
Can other organisations still get involved?
Yes. If your charity or organisation serves people who have experienced problematic knee replacements (as described above) we hope that you will sign up to become a supporting partner of this PSP.
For more information about joining the Partnership, please contact Mr Johnny Mathews at firstname.lastname@example.org
Whether you are a partner or not, you can also:
How can organisations and the public find out more?
If you have any other queries, or would like to get involved, email the project co-ordinator Mr Johnny Mathews at email@example.com.
How is research currently funded and prioritised?
Historically research agendas have been set by researchers, members of industry or funders. Often this is done with examination of the published literature to help identify where the gaps in knowledge are.
This is sometimes, but not always done with input from patients, carers, and health and social care professionals.
We want to ensure patients and carers have their say.
This PSP process will successfully combine the input of patients, carers and health care professionals with a search of the literature.
What will happen to the “top 10” questions?
The “top 10” questions will be publicised in the literature and at meetings where health care professionals, researchers and funders are present.
PSP will work with its stakeholders and partners to raise awareness of the priorities and try to get them funded as research projects.
The questions will then be considered by the National Institute of Health Research (NIHR) and other funding organisations when commissioning research